Membership Survey

In efforts to continue to provide N2 members with the most relevant resources and tools to help you with your work, we’d like to hear from you. Please take a few minutes to fill out the survey so that you can let us know your thoughts on the value N2 brings to your organization, how we can help you communicate about N2 to your colleagues, what you think N2 does well, and where it needs improvement. N2 is here to serve our membership, so we encourage you to provide us with feedback to make N2 a better organization.

The survey should only take about 10 minutes, with the majority of the questions on the first page.  We value your responses, and thank you for taking time out of your busy schedule to provide feedback.

Take the survey here: https://goo.gl/forms/iRDHHWbenuxnFgWv2

N2 Office Expands

N2 is excited to announce the hiring of a business development specialist and a communications specialist to support our important work.

The Business Development Specialist will work with the N2 Board of Directors to develop and implement a strategic membership growth plan.  The Communication Specialist will assist N2 with all our internal and external communications needs including the development of a variety of promotional materials.

Dawn Richards is N2’s new Business Development Specialist. She has a PhD in analytical chemistry, and has worked in various roles in the research field, ranging from being a bench scientist to a business development officer.  Dawn has been the Project Manager of the N2 Clinical Trials Education and Awareness Committee since October 2014. In her role, she has helped the committee work with patients and caregivers on developing the website www.itstartswithme.ca and the accompanying video on the site.  She has also helped in the dissemination of these and other committee-developed resources. She is excited about her new role as our Business Development Specialist which began October 17th.  Dawn can be reached at dawn.richards@n2canada.ca.

Kate Darling is the N2’s new Communication Specialist. She has a Bachelor of Communication in Information Design from Mount Royal University. Her professional background includes working with business associations and non-profit organizations to increase their online presence and manage their stakeholder communications. Kate will be helping N2 develop and implement marketing materials, communication strategies, and a social media presence. Her interest in clinical trials and advancing medical care in Canada stems from experience through a lengthy family medical history, and the hope that future Canadians will be faced with fewer health challenges. Kate can be reached at kate.darling@n2canada.ca.

Not a member of N2? Sign Up as a new member of N2 now!

Check out our post on LinkedIn.

N2 Increases Awareness of Clinical Trials!

As part of N2’s efforts to increase awareness of clinical trials with its membership and beyond, N2, in collaboration with N2 member the Huntington Society of Canada, teamed up to present a webinar on clinical trials and Huntington disease on October 1, 2016. This webinar focused on what clinical trials are, why they are important and what a potential participant can expect when first being approached about a clinical trial.  There was also information on Huntington disease clinical trials and how to get involved.If you are interested in the webinar, you can view it on N2’s Youtube channel  https://www.youtube.com/watch?v=DTAv6NkiMao.  If you would like to co-host a webinar with N2 to spread the word about clinical trials, please contact Dawn Richards.

N2 Membership Reaches 100!

N2 is excited to announce that we now have 100 member organizations!  This month Carleton University joined N2.  Today, 100 organizations representing thousands of clinical research professionals, from over 200 sites and across numerous therapeutic disciplines have joined N2’s initiative.  Members include organizations as varied as research networks, universities, hospitals, government entities and industry.  The breadth of N2’s member organizations and the depth of their collective experience have enabled N2 to become an important voice in the national clinical research debate.

Privacy Course Now Live

N2 and CITI Canada are pleased to announce the launch of the “Introductory Course on Privacy and Security for Personal Health Information in the Canadian Health Research Environment.”

This course was developed in order to provide learners with a basic understanding of privacy and security requirements for health research with humans. It provides important information, based on accepted privacy and security standards and regulatory requirements, for the appropriate collection, use, dissemination retention and destruction of PHI within the health research environment. The materials address requirements set out in guidance documents such as the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS) as well as federal, provincial and territorial legislation including PIPEDA: Personal Information Protection and Electronic Documents Act.

Although the main focus of this course is on personal health information (PHI) as opposed to all personal information (PI), since PHI is a subset of PI, the same principles apply to both categories of information and PI is mentioned frequently throughout the course. This means that the course can have applicability to all types of research conducted with humans.

The primary target audience for this course is anyone who administers, reviews or conducts health research (which is research that involves the collection of health data such as occurs in – but is not limited to – clinical research).  Since many of the same principles apply to other types of research the secondary target audience for this course is anyone who administers, reviews or conducts research with humans where privacy issues may be important.

Privacy & Security Modules:

  1. About the Course
  2. Introduction to Federal and Provincial Legislation Regarding Privacy as well as Other Sources of Guidance
  3. Identifiability of Personal Health Information used in Research
  4. Personal Health Information Privacy and Security Issues for Principal Investigators and Members of the Research Team
  5. Data Security in the United States According to the Health Insurance Portability and Accountability Act (HIPAA) [This module is optional as it is not applicable to the Canadian research environment but may be useful, for example, for anyone involved in studies that are connected to the U.S. National Institutes of Health]
  6. Privacy and Security Issues for Students and Instructors
  7. Basics of Information Security
  8. Protecting Your Computer, Passwords and Portable Devices
  9. Safer Emailing, Messaging, Social Networking and Web Surfing
  10. Privacy and Security of Information for Researchers Off-Site